Shaun is scheduled to have surgery today at 12:00pm (Eastern Standard Time... for those around the world... :)
During the procedure, the doctors will place the tracheostomy, close Shaun's glottis, and do a muscle biopsy to look for more answers in Shaun's disease. For the next three days post-surgery, Shaun's airway will be considered critical.
Let's pray for Shaun, and the rest of the Steyaert family. Pray for the doctors performing the procedure and managing Shaun's post-op care. for Shaun to be able to wake up easily from the anesthesia (it has been difficult in the past), and to get answers from the muscle biopsy.
Our brother, Caleb, flew in from Oklahoma and will be with Denise and Shaun for the next few days. Denise is so grateful to have him there with her!
 |
| Krissy and Shaun during his 24 hour EEG |
 |
| Vicki and Angela visit Shaun and Denise! |
For just an general update: Shaun is still diagnosed with "unconfirmed mitochondrial disease" while other tests results are still pending for a more firm diagnosis. The neurological events that began occurring earlier this week have been determined to be tremors (chorea) instead of seizures. The doctors see this as disease progression and are working on the right combo of meds to control it.
"Be joyful in hope, patient in affliction, faithful in prayer."
Romans 12:12
Stephanie, thank you so much for updating the blog for Denise. I check it regularly. Please continue to post. My love and prayers are with Shaun and his family right now.
ReplyDelete