Cleveland

Monday, Peter, Shaun and I trekked up to Cleveland, Ohio to see a new specialist. Dr. Sumit Parikh is a neurogenetisist specializing in mitochondrial disease. This appointment was the initial visit where he got background information, ordered more tests, developed rapport with Peter and I and learned who Shaun is. Shaun will need to have an EEG, get a spinal tap and skin biopsy, have more blood and urine testing. Through these tests we will hopefully rule out most other diagnosis' on his possibility list.

Shaun is doing much better from his bout with bronchiolitis. He is breathing normally, has much less mucus, and is starting to be more active again. Thank you for your prayers for quick healing!

 Gains Shaun has made this week are getting stronger at sitting with support, reaching out to catch himself from toppling over, and army crawling!! He can sure move around and getting faster too. He still prefers to be held and cuddled, but every once in a while I can put him down for a bit (just have to watch closely to make sure he doesn't go anywhere!) He is enjoying the extra attention from Grammy Mari and Aunt Krissy. They came down to visit and watch the big boys while Peter and I took Shaun to Cleveland. We also cut Shaun's hair this week (his 2ond haircut) and he looks so grown up! He is showering us with smiles and coos. He loves talking on the phone, especially if someone is actually talking back.  I just love this boy and the smiles he gives out capture his momma's heart.

Dr. Parikh is a leading doctor in the mitochondrial feild. You can learn more about him or the disease here.