Thursday, January 17, 2013

We are finally home!!

Just a quick update for all my prayer warriors and followers. We are HOME!!! We were discharged yesterday after 10 days of being in the hospital. I can see God's hands all over our trip. This will be short as my life is calling but I wanted to share my insites. Having Shaun in the hospital allowed the Gastrointestinal Doctors to really figure out what may be going on with him and not being able to tolerate feeds. He was having a terrible time vomiting and not pooping easily. We tried changing formulas but this didn't help. I was at a loss of what to do for him. I was having a terrible time trying to see or hear from the doctors and Shaun was again loosing weight. He was in poor shape. Getting down to UVA, Shaun was able to get the different tube, the GJ tube to feed into his intestine. Although this doesn't allow him to be off feeds during the day, it does allow for time through the night, like a regular person, to be asleep and not using this power. We decided while in there that his getting a fever is like everyone in NYC turning on a light and not telling the power company they are doing so. This puts a huge strain on the system and overloads it. With that being said, we know now that any infection, sign of fever or sickness can be costly or dangerous to Shaun. We will have to take many precautions now. As they were getting ready for discharge, Scottie came down with the flu and double ear infections. Stephen is now showing signs of flu too so we are trying to be extra careful. Please pray God's hand of protection over Shaun, that he would be safe of the flu, and that it would be expelled from our house without incident. We are sure glad to be home and Shaun is loving seeing his brothers again, even though it is only from a distance. While in the hospital, we met many people and made some heart connections with the nursing staff, respiratory therapists, occupational and physical therapists, nurses and doctors. It is truly amazing to see God's hand in the midst of trial. I thank Him for giving me the insight to look for and things to find thanksgiving in.  Other ways God showed he was in control all the time was the clearing of the intussusception, being found out by one of the doctors who worked on Sarah after close to 10 years, showing interest in communication and learning during "School time" with Ms. Chelsea, and all the prayers and people being the "hands and feet" of Jesus while in the hospital. The doctors came up with a possible lead into Shaun's condition while we were in-patient. The test is out in Oregon right now and if confirmed I will let you know. It takes around 6-12 weeks for the test to come back but until then we will continue to love our little boy!



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