Friday, May 10, 2013

Celebrating Shaun's Life

Today Shaun turned 23 months old....
 ...and we celebrated his precious life!
We had cake with unlit candles and sang Shaun Happy Birthday.  Shaun even got a taste!
The mood was festive and there was rejoicing for sweet Shaun's life through many, many tears.  Lots of people visited... family, friends, Shaun's hospice team, Shaun's therapists... some traveling far to come.. and so much love was shared with Shaun and everyone there.  Stephen and Scottie helped other visitors decorate Shaun's room and make molds of the boys holding hands.  The sound of singing could be heard throughout the PICU as the group sang Shaun's favorite praise songs and children's songs.  Shaun always loved being sung to.  He was passed from arms to arms as everyone wanted to get ahold of him and get a little bit of Shaun snuggles.   Here are just a few pictures from this full day...
First visitors of the day... Shaun's big brothers love him so much!
Precious moments with Daddy and Shaun
Scottie could sit for hours like this...
Ms Erin spent countless hours with Shaun this past year
"Grandma Vicki" with Shaun and friend, Sarah
Cousin David drove from Alabama to be with Shaun
Shaun's cousins send their love from Ohio and South Korea

"Aunties" Becca and Alisha (and baby Sarah) snuggle Shaun.

Brothers, Stephen and Scottie, and their Mommy snuggle and love on Shaun.

There were many more visitors not pictured here, and so much more that this day held.  Perhaps we will be able to reflect and write more about it in the future.  

Before all the visitors left for the night, we spent some sweet time in prayer.  Shaun's Daddy prayed sweetly and cried.  We all cried.  This has been a terrible, horrible, wonderful day.   Tomorrow the doctors will wean Shaun off of the life supporting measures that are in place as he will become a DNR.  Pray for tomorrow.

Shaun is spending this night snuggled with his Mommy, his Daddy close by.
"Now I lay me down to sleep,
I pray the Lord my soul to keep..."

4 comments:

  1. My heart just breaks for you and I cannot imagine your grief. Or the strength it will take to let go. It's strength only God can provide. I am so inspired by your faith and know you and your family have touched so many lives. Of people you don't even know. Of my 3 year old son who has talked about death as though scared for a while, but this morning saw this beautiful picture and asked if Shaun was in heaven yet with a smile. I loved talking to him about how you are celebrating Shaun's life and the fact that soon he will be free of all pain and with Jesus.

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  2. We are storming heaven for your family. Grieving "with you" for the pain you are enduring and praying that the God of all comfort will sustain you and your family; will fill you with a peace only He can provide; and will give you joy in knowing that Shaun will have his victory in heaven because of our Savior's great mercy. So much love you to and your family. So grateful to have been touched by Shaun's story and eager to see how God will use it.

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  3. O,what a celebration, o,what a family, o,such love. God has blessed you and is keeping you. He is shining His face down upon you. May He be gracious to you and lift up His countenance upon your family and bring peace to you all. Love and prayers to your sweet family, Becky "Grammy" Puff

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  4. Please know that much of my day was spent praying and thinking of you and your family. My heart aches for each of you. May God shine a special light of peace on you all today.

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