Denise said that it was wonderful to see them... and terrible.. and fantastic.. and sad... all these emotions rolled into one. While they were visiting, the boys asked her, "when are you and Shaunie coming home?" And she had to reply that at this point she doesn't know if Shaun will be coming home... as she put it to her boys "home to play with you, or home in Heaven to play with Sarah".
It is so hard.. not knowing.. not having answers.. waiting.
Still, Stephen and Scott added so much sunshine to the room, not only by their loving presence, but they decorated Shaun's room with pictures that they colored, and made paper "chains of love" with pictures and messages on them. Stephen wrote on some of his chains, "You are my little champ, Love Stephen", "We love you!", and "You get better"! Scottie wrote, "Scottie Loves Shaun" and "You are a Super Hero!".
They both loved kissing on Shaun and spending some time with their Mommy. Really, it was so good for them to come visit.. for them and for Denise (and Shaun!).
Thank-you, Erin, for taking the time to serve our family in this special way!
Shaun "sleeps" on, as we wait, hope, and pray that the new medicine will work (apparently it takes 2-3 days for the load dose of Topamax) and the brain activity will return to normal so that Shaun can be woken up to interact with us again.
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